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A Caregiver's Insights
We never know if we may be thrust us into the role of Caregiver. Whether you are a caregiver, or know someone who is, this article is for everyone!



Being the caregiver of a TBI (traumatic brain injury) survivor for more than ten years and meeting serveral others in much the same situation has shown that each one, albeit the  handicapping condition, is unique.  However, it would appear there are shared dilemmas and common concerns.  It is well-known and marvelous that modern medical advances have made it possible for many more people to survive debilitating health conditions and, or, traumatic injuries. Hopefully, all of society's interest in this segment of its community will keep pace so that the lifestyles of caregivers and their charges can maintain a level of comfort and productivity. 

 To promote awareness and help to educate a list of suggesstions follow:

1. Caregivers have an overwhelming sense of responsiblity.

2.  Caregivers often feel isolated because other aspects of life have to be reprioritzed.  Letters, gifts, engagements and even phone calls get put on the back burner as the caregiver runs out of time or energy.  Sometimes it might even be a lack of  funds..

3. Caregivers have difficutly dealing with the legal affairs, making the appointments, and and then transporting their charges to the necessary places. Especially, working people with jobs and homes to maintain find these things hard to maintain.

4.  Caregivers try to keep life as normal as possible for their charges and all other people involved.

5.  Caregivers become exhausted and burned out.

6.  At times caregivers have a hard time recognizing the situation as it really is and may make it better or worse than actuality.

This article would not be complete without some suggested ways to help. 

Here are a few:

1.  Offer transportation or phone support.  Persistence may be necessary as most
caregivers have practiced being independent.

2.  Find out where caregivers are and offer to be a listener.  Often caregivers feel they have worn out all their listeners.

3.  Help to connect caregivers with the resources they need.  Help them find places for legal assistance, aid with housing, transportation options, and even recreational facilities.

4.  Write cards or notes  from time to time.  They are an overwhelming source of support and comfort.

5.  Be a friend to the disadvantaged person.  More than anything, this section of society needs companionship. 

 
Finally, to caregivers, who can, more than anyone else, impact the situation

1.  Care for yourself in whatever way is necessary.  Learn to read yourself for signs of stress and then do something.  Suggested options see a counselor or clergymand.  Take a weekend of by hiring someone to stay with your charge or arranging for him/her to stay over with someone.  Ask someone for specific help. It is hard to know the need unless it is spelled out.
2.  Maintain optimism, which takes effort but must be done.

3.  Cultivate a love relationship with your charge......yesterday we did something that was  simple, not costly, and so much fun.  We went and sat outside the park in the shade and had lunch.  Simple, but fun. 

4.  Joke with each other and laugh.

5.  Consistently strive to get routines established. 

6.  Reach out everywhere and listen to everything.  Listens to all and then sort out.

7.  Let your family and your community help you.  Especially, let your family help.  They need to be part of it..

8.  Learn to trust one or two good friends who will be there through any circumstances.

9.  Help your charge maintain his/her personhood.  Allow for as much independence as possible.......promote it.

The last point needs its own paragraph. 

A spiritual orientation seems reeminent.  Without a higher power the struggles might be overwhelning and the whole experience fruitless and depressing.  Learning to trust someone greater than  ourselves allows for  extraordinary spiritual development.  On a personal note,  I would never have sought for God at this level of need previous to our situation.  I would never have found Him with the same intensity.  The same is also true for my charge.

Contributed by: Dee Wisdom